Surviving Stage Four Ovarian Cancer: Lessons Learned

Surviving stage 4 ovarian cancer: lessons learned

Nancy Rugart Plummer, a survivor of, stage four ovarian cancer, and, metastatic brain cancer, shares her powerful story and the lessons she learned from her journey. She discusses her diagnosis, treatment, and the challenges she faced along the way. Nancy emphasizes the importance of early detection and self-advocacy in cancer prevention and treatment.

She also highlights the role of caregivers and the need for support and understanding during the cancer journey. Nancy and Robert Rugart discuss the lessons they learned from Nancy's cancer experience and how they have applied those lessons to their lives. They emphasize the importance of getting affairs in order, finding reasons to fight, and taking life one step at a time.

Download the podcast here: 

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Key Takeaways:

  • Early detection is crucial in cancer survival, and it is important to be proactive in seeking medical attention and advocating for oneself.
  • Caregivers play a vital role in supporting cancer patients and helping them navigate their journey.
  • Getting affairs in order, such as creating a will and discussing end-of-life plans, is important for everyone, not just cancer patients.
  • Finding reasons to fight and focusing on the joys of living can provide motivation and strength during difficult times.
  • Taking life one step at a time and being open to change and adaptation can help overcome challenges and find new opportunities for growth.

Introduction About The Guest(s):

Nancy Rugart Plummer is a survivor of stage four ovarian cancer and metastatic brain cancer. She is the founder of Becoming the Best You and is a wellness and relationship coach, author, and columnist. Nancy helps men and women navigate life challenges to become upbeat, unstoppable, and unafraid. Her inspiring book, “Becoming the Best You: The Lessons Cancer Taught Me,” is due out this month.

Robert Rugart is the co-founder of Becoming the Best You. He left his job in finance to help write the book with his mother, Nancy, and to inspire and empower caregivers based on his own experiences as a caregiver for his mother, grandfather, and wife.

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Cancer diagnosic stage 4 ovarian cancer

Myrna: All right. Well, Nancy, before we started recording, I mentioned that I am reading the book Outlive right now by Dr. Peter Attia, and his book is basically talking about the four horsemen, which are the top killers right now. And cancer is one of the top ones, number one is Heart disease.

So what he talks about is early detection as a survival necessity. So I'm going to start off by saying you got diagnosed with, stage four ovarian cancer, which is really not early detection, and you had, metastatic brain cancer, which means that the cancer is already spread. I am extremely curious to know your story. Let's start with the, ovarian cancer. How was it diagnosed? How did you treat it? And then we can go on to the, metastatic brain cancer.

Nancy: It was definitely a marathon. It all started in the fall of 2015, and I had been dealing with bloating for months on end. I'd been dealing with needing to urinate all the time, and yet at the same time being constipated up to a week. And I knew that something was wrong. I didn't know what it was. So I made an emergency appointment with my OBGYN of 25 years. And I felt, since he was a superstar in the world of gynecology, that he would be the person I could trust and give me answers to my pain.

He took one look at me with my hair done and my makeup and my beautiful outfit, expressed my concerns in this dismissive voice. He said, Nancy, look at you. You're too pretty and you've been a perfect specimen of health. I reeled inside my brain. I was thinking, oh, my God, what does wearing makeup and a pretty outfit have to do with my health? So from there, we fought a little bit head to head, and he agreed with me that he would give me an ultrasound in a couple of weeks. So I didn't tell anyone about my problem.

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Transform Your Mind Podnews

Cancer misdiagnosis

Anyway, I didn't share with anyone and I never heard back. I called them ten days later and they just said, your ultrasound came out clean. Your scan is clean. So in their minds, I was healthy. And for seven months I was quiet, albeit in pain.

And then in June of 2016 so seven months later, I asked a friend to take me into the emergency room I knew I couldn't go on, and I knew that I was probably at death door.

Myrna: What was happening then that you needed to go to the emergency room?

Nancy: As the months went on, I found myself being able to eat less and less, and my exhaustion was continuing, and I was feeling more and more bloated.  In my mind I kept thinking, oh, my goodness, you're not exercising enough, not doing enough core work. Even the day when I went into the emergency room, I must confess that I was doing windsprints down the lane because I was growing this abdomen. Little did I realize that it was 67oz of  cancerous fluid in me, that's a lot of ounces for someone that's not the heaviest person to start with.

Anyway, I'm in the emergency room, and the on call doctor did a quick ultrasound with me and came back with discharge papers.

Myrna: So obviously what you're saying is this cancer cannot be picked up through an ultrasound.

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Stage 3 ovarian cancer diagnosis

So I looked at him, and I gathered the strength that I could. I was really sick, and I just not I haven't shared with anyone, but I think I'm dying. You have to save me. So we agreed together to do a CT scan, and he came back 3 hours later and said, ma'am, you have, stage 4 ovarian cancer.

Robert: Obviously, she had very extensive, ovarian cancer, at the time. I think when she was first diagnosed, it was late stage three. We hadn't found proof that it metastasized anywhere outside of where they deem stage three. So she was three C, and she had cancer ranging from, obviously, her pelvis all the way up to the base of her diaphragm at the bottom of her lungs. And so she needed an eight hour long surgery with,  eight different specialists.

Myrna: What was the surgery for?

Nancy: So what was it A bilateral salpingo-oophorectomy is the surgical removal of both ovaries and both fallopian tubes to treat ovarian cancer. The goal of the procedure is to remove any cancerous cells and prevent the chance for recurrence.

They had to take out 22 inches of my bowels. So I was given an ostomy. That was its own journey.

Myrna: All right, so let's fast forward to the end. Sure. When did you get the all clear that the cancer was gone? I'm assuming that after all your treatments and I'm assuming you took chemotherapy as well.

Nancy: Yeah, I had chemo every week for my chemotherapy. As long as the chemotherapy. So six months.

Myrna: At the end of the six months, they said, you're cancer free. So everything they took out the cancer stuff, and so why did they say it was stage four? Because I understand stage four means that it's moved.

Nancy: And I just want to share to every, cancer survivor, out there and caregiver that when the bell rings, you ring your bell in your remission. Cancer is not over. All the scars and all the wounds and all the issues you've had in your life, especially for me, was just ashes. I had lost my father, lost my marriage, lost my home, and it was a tough journey. Fast forward. I was so frail. I moved to Miami, packed up my stuff, where one of my dearest friends was welcoming me, and I could never have dealt with the cold and the weather in Philadelphia.

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Transform Your Mind Luminary podcast

Metastatic Brain Cancer diagnosis

Seven months later, I go to Rome with a friend, on vacation, great time. And two days later, I collapse from a grand mal seizure. They took me to a public hospital in Rome, and I awaken 16 hours later to see six men in diapers and a gown. And I looked down at myself. I was also in a gown and diapers. I have no idea why I'm in there. No one's speaking in English. There's no air conditioning. It was a bit of Hitchcock movie. And I'm thinking, oh, my God, I must have cancer again.

4 hours later, the neurologist comes in and speaks to me in English and says, you suffered a grain mal seizure. You have a brain tumor. My daughter flies in, bless her heart. She comes in so sweet. She flies into Rome and helps me coordinate me to my transfer to Miami and undergo brain surgery.

So then they do the surgery, and they say, you have, metastatic brain cancer. Before they did the brain surgery, they said, because your brain tumor is the size of a ping pong ball and where it is located, you may be paralyzed on your right side, and you may never speak again.

They remove the tumor, and they say, yes, it is a metastasis of, ovarian cancer. The median lifespan is five months. And I'm now still alive after five years. One of the lone survivors.

Myrna: Thank be to God. Wow. Yeah. Because that's basically what I'm learning right now. If you don't catch these things early, they move. Right. And when they move, for instance, you had all these surgeries, but there's no way the surgeon can pick the ones that have moved. Wow.

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Becoming a caregiver for cancer patients

Robert: You know, cancer is a war that you don't want to fight on your own. I think there were two big things. Obviously, so many things helped, notably, listening to her doctors and paying attention to medical advice and being an advocate for herself were all huge things.

From the caregiver side, I think it was very important. Like we were saying, the exercise thing to push yourself right when you're going through chemotherapy, especially when she was going through it, chemo is basically poisoning your body and hoping that the cancer dies before the rest of your body does, which normally happens because cancer is voracious and eats up lots of stuff, including the poison a lot faster than the other cells. So there's a reason why we do it.

But if you're going to win that fight, you need to stay as healthy as you can. Keep pushing yourself, keep trying to exercise when you can. And exercise doesn't have to be running wind sprints. It can be. At her lowest point, exercise was breathing into a spirometer, A spirometer is an apparatus for measuring the volume of air inspired and expired by the lungs. A spirometer measures ventilation, the movement of air into and out of the lungs. The spirogram will identify two different types of abnormal ventilation patterns, obstructive and restrictive, doing single leg lifts or single weightless arm curls in her hospital bed.

Nancy: You know, I had pneumonia, and Robert got the call and was like, mom's going to die of pneumonia before she dies of chemo, right? And so he comes in, and obviously, I didn't have the wherewithal to even get that spirometer and practice my breathing and get stronger. And I tell you, he tried everything. He was cajoling me, he was pushing me, but he kept figuring out, and I'm begging caregivers alike to help your patient to learn how to push themselves when you're not there, but do every tactic you can, because he's right. If I didn't get strong enough, the chemo would have killed me.

Book Becoming The Best U
Book Becoming The Best U

Lessons Cancer taught me

Tell us about your book “Becoming the Best U – The Lessons Cancer Taught Me”

Nancy: And you know, though, I think that what was so important as Robert being my coach in writing and then him coming from the caregiver side is, know, my story wasn't written to share why I survived or how I've endured. It's about the lessons I learned.

One lesson is getting your affairs in order, and I think that everyone, whether they're going through cancer or not, should all learn, know, get your affairs in order and what that looks like. And I'd like Robert to discuss that because that's. Something that my caregivers had to talk to me about because all I could focus on was living and surviving. And now I just say to everyone, oh, don't wait until you're sick.

Robert: But if there's some cause that you really want to contribute to your plan right now could be to give them money from your estate. But if you make it past whatever you're going through, your plan could be to give them time from your future self. When you're planning a remembrance of your life or a funeral, however you want to phrase that, deciding what it is you want to be remembered for is so important.

Not only does it let you reminisce about the past and the wonderful things you've done, it also maybe I want to be remembered for something I haven't done yet. Certainly if you are near the end of life, or potentially near the end of life, it can be hard to plan for something that you haven't done yet. But you can at least, like I was saying, realize the direction you want things to go. You can make them important in your will, whatever. And then if you get through this struggle, then you can start directing your life and point your life in that way. And I think that's really important.

Conclusion

All right, guys, this was a very interesting conversation. I learned a lot from you. I am very blown away by your story surviving, stage four ovarian cancer, Nancy, Very blown away by your son and your daughters and the people that held you up when you needed holding. You know, I'm glad that you wrote the book and I'm glad that you came on the show to encourage those listening, whether they have a family member like myself that's going through, cancer treatments, right now or they're a survivor, and just because it's, Cancer Awareness Month.

Early detection is basically what saves lives. Go get your screening. Do the things that you need to do to improve your chances of survival. Awesome. So your book is going to be out in October, and I'm assuming that it'll be available on Amazon.

Robert: That is correct, yeah. Our website is, becomingthebestU.com

Additional Resources

https://blog.myhelps.us/the-emotional-trials-triumphs-cancer/

 

 

 

A Dolphin Trainer Finds Purpose After Cancer

Joy the story of cancer survivor

It was the first time since I started coughing, I put my hand on my throat and I felt a lump. Shortly after that, I was diagnosed with, throat cancer. It was stage two, Non-Hodgkin’s lymphoma. I remember asking the doctor what happens if I don't get, chemotherapy, and she said you'll be dead within the year. I really didn't have any choice, it was an aggressive form of, cancer, and I needed to just stick it out and battle it with the, chemotherapy.

I came up with the idea of making a documentary of my, cancer, journey  because that way I could still learn about filmmaking and I wanted to show a story of, survival, because when I turn to the movies, I don't see any, cancer survivor, stories only stories of, cancer, patients who  passed away. I knew that there were millions of, cancer survivors, out there and I wanted to show a story of, survival.

My guest today is Joy Claussen Soto. Joy is a, cancer survivor, filmmaker and author. Today, we are going to be talking on the topic “How to find your, purpose, after cancer or after a major illness?

Myrna: Can you share your journey as a, dolphin trainer, and how that specifically helps you overcome, cancer, because I know that you're tying them together somehow.

Listen to the full interview here:

My Journey as a Dolphin Trainer

Joy: Well my journey as a, dolphin trainer, started a long time ago when I was in college. For me, the really important part was when I applied to get a job at SeaWorld.  I tried a number of times to get a job at Sea World, but it never worked out because they just weren't hiring people. Fortunately, I happened to call at the right time and they asked me to take a, swim test. I was in Chicago at the time, so I had to fly out to San Diego and I had one day to take this test.  I went down to a pool to practice the, swim test, which was holding your breath for 120 seconds underwater, touching the bottom which is 26 feet deep and some other things.

Those were the biggest challenges that I was having trouble with. So I went down to the pool to started practicing. I would hold my breath and then come up maybe a quarter of the way. I couldn't even get half the way through the pool without needing to come up for oxygen and when I dived down in a pool that's six feet deep my ears start to hurt. But, for some reason I still got on that plane and went to San Diego to do this, swim test, at Sea World. I knew that I hadn't practiced physically, but I remembered reading about athletes and how they used their minds to visualize the ball going through the hoop, and gymnasts who visualize themselves doing all their moves. Those were my thoughts as I was on the plane. I started visualizing everything. I visualized myself swimming through the water, wanting to give up and not giving up, and making it to the other side and also same thing with diving down.

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Visualizing Dolphin trainer swim test

I practiced holding my breath the whole time on the airplane. I probably looked like a crazy person. I had my watch out and started practicing that, visualization, also helped me, beat cancer.  I went there to Sea World took the, swim test, and miraculously, I got in the water and I passed the test. I was so happy that I had done it, I didn't even care if I got the job because I was just so proud of myself that I put myself out there and I did something that I  physically couldn't do just 24 hours before.

When it comes to, cancer, I'd seen how powerful, visualization, was. I would use that when I was sick, because I think one of the things when you are going through something like that is that you feel a loss of control. We all know that a loss of control can lead to, depression. When I was going through, cancer, I couldn't have control over what the, Chemotherapy, was doing to my body. I didn't have control over what the doctors were doing, but I did have control over my mind.

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Visualization to Beat Cancer

I visualized, Chemotherapy, killing the, cancer, eating the, cancer, and make these little things in my mind to help it along. So, that helped me. Even though, it may not have been real control, but perceived control,  I was using that as one of the ways I was able to gain back control. That was one thing that helped me from my job as a, dolphin trainer.

Myrna: Visualization, is powerful. I always reference back to Christopher Reeves, when anybody's talking about, visualization, as a part of healing. Christopher Reeves book called “Nothing is Impossible” talks about how he used, visualization, to heal his body when he was paralyzed from the neck down and all he could do is blow into a straw to speak. That was powerful stuff and I never forgot it.  Visualization, helped him start walking and speaking. He did it by sitting on his porch every single day and, visualizing, his body healing and that's my base. A lot of people have done that since then but visualization is big. Can you bridge the gap in a bit for us about your cancer story?

Joy: Even though my passion was working with dolphins, I also wanted to become a filmmaker. So, I quit my job at SeaWorld and enrolled in Film School. I was in film school for three months and that was when I found the lump in my throat. I had been coughing, the cough was getting worse instead of better and I felt really tired.

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Being diagnosed with Throat Cancer

It was the first time since I started coughing, I put my hand on my throat and I felt a lump. Shortly after that, I was diagnosed with, throat cancer. It was stage two, Non-Hodgkin’s lymphoma. I remember asking the doctor what happens if I don't get, chemotherapy, and she said you'll be dead within the year. I really didn't have any choice, it was an aggressive form of, cancer, and I needed to just stick it out and battle it with the, chemotherapy.

I came up with the idea of making a documentary of my, cancer, journey  because that way I could still learn about filmmaking and I wanted to show a story of, survival, because when I turn to the movies, I don't see any, cancer survivor, stories only stories of, cancer, patients who  passed away. I knew that there were millions of, cancer survivors, out there and I wanted to show is a story of, survival.

Myrna: What it sounds like is that, at no point in time you thought you're going to die, because you wanted to show a story of, survival,  that's faith. Where did you get that faith?

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Faith and survival

Joy: I've always had a belief in God, and my dad taught me about, faith. I remember we had a lot of my relatives pass away in a short period of time when I was little. I remember sitting on the chair with my dad in our house, he explained to me what death was.

He said some people are here for a certain reason – to help other people learn lessons and to learn lessons themselves. That can mean just being here for a couple of minutes or it can mean an entire lifetime. So, I just kind of took that as my understanding of, purpose, and I've used that throughout my life. Well, I'm here to learn lessons, but I don't know what those lessons are. Hopefully, I'm learning them right now and I'm here to help teach other people lessons. So, that has helped me get through, cancer treatments.

Myrna: Regardless of how you believe and how much, faith, you have when you heard that, cancer, diagnosis, fear had to creep in.

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Fear and Zig Zigler

Joy: Absolutely. I was in a battle with myself and, fear. I have footage in my documentary of me talking to the camera at my lowest point when I let, fear, in. What really helped me, was I had listened to a Zig Ziglar motivational tape. There was one story of him being stuck in an Airport, his flight was canceled, but instead of him being angry or upset like most people would have, he just said fantastic. He came up with all the reasons why it was good that his flight wasn't taking off:

  • Maybe there's something wrong with that plane
  • something wrong with the people flying that plane
  • the weather was bad and could crash the plane.

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If that's the case, he said “I don't want to be up there, I want to be right down here, fantastic.”  That was powerful for me, because it showed me that we have control over how we either respond or react to things. I had a moment when I remembered that life is indeed fantastic!  I started thinking of all things I was grateful for:

  • I was grateful for my friends and family and all the love I was receiving
  • Grateful that they found my, throat cancer, at stage two
  • Incredibly grateful that they found my, cancer, period and they can treat it.
  • I started flipping it instead of going, I was diagnosed with cancer and it's horrible, I started flipping it to get to fantastic.   It helped me to get through it better and become a, cancer survivor.

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An Attitude of Gratitude to beat cancer

Myrna: That's awesome. This is good stuff, they say. Another quote is I like is:

It's not what happens to you, but how you respond to what happened to you.

An,  attitude of gratitude, is a powerful treatment for, cancer. Now, how did you learn to control the, uncontrollable? You said you were able to control the elements in an, uncontrollable, situation. You just said a minute ago that your, visualization, of the, chemotherapy, that you had to do, is an, uncontrollable, situation. What are some of the other things or some of the other elements that you use in this, uncontrollable, situation to control?

Joy:  The whole time that I was sick, I had this visual of me surviving and making a, story of survival. I think that was very powerful and that helped me in taking back control of my life. The, attitude of gratitude, my notebook and the documentary, those were ways I was able to grab back some control when I was going through an, uncontrollable, situation.

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Making a Cancer Survival Story documentary

In my, cancer survival, documentary, I filmed all the details of my very bad moments with, cancer, when things weren't going well. At one point, I was rushed to the hospital in the middle of the night. I was on a bench for a short period of time. I was very weak. I could hardly talk because I have mucositis. It goes all the way down. It's like a strep throat, but it's from the chemical from my, cancer treatment. Everything was bad and that moment. I needed my first blood transfusion. I asked my friends to keep filming and take footage of me when I'm getting the blood transfusion. I think it is really important to see, that you can go through the fire and come out at the other end.

Myrna; I love it. Where can readers watch this documentary?

Joy: I recently uploaded to YouTube. It’s called “Just one Year – A Story of Triumph over Cancer”. My book is more complete and is called “Joy – The story of a Dolphin Trainer, Filmmaker and Cancer Survivor”.

Myrna: How did becoming a, cancer survivor, help you find your, purpose? Didn’t you think that being a, dolphin trainer, was your, purpose before, cancer?

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Cancer Helped me Find My Meaning Of Life

Joy: I've always loved animals and the ocean. It's always been a big part of my life. That was just something that I enjoyed.

Myrna: That's what you use, positive reinforcement, to work with, Dolphins.

Joy: It just kind of all came together, but I don't know if working with, dolphins, was my, purpose in life. I believe that becoming a, cancer survivor, is my, meaning of life.

Myrna: It gave you a little direction, right?

Joy: Yes, you're not going to just jump out of the crib and have a,  purpose, or know the, meaning of life. I felt like I survived, cancer, to help other, cancer, patients survive. I've been the happiest helping others. I was able to start a program, helping kids with cancer,  where they can come to the park and get in the water to meet a, dolphin. One of the most important parts of that program was that I would tell them my, cancer survival story.

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Sharing my cancer survival story to help kids with cancer

I would say, “Hey, I know a lot of you here are being treated at children's hospital. I was treated there too, but now look; I get to work here as a , dolphin trainer, in my dream job and I get to share it with you.”

Myrna: That's a powerful thing and that gives people hope.

Joy: The first moment when I realized that whenever someone survives something, there's something magical about, survival.

Myrna: What made you write the book and what is the message that you're trying to share?

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Transform Your Mind Luminary podcast
Transform Your Mind Luminary podcast

Joy: I wrote the book to give people hope. Whenever one of my friends knows of someone who has been diagnosed with, cancer, they would always refer that person to me and I would tell my, survival story, to a lot of different people just to give them hope from my, survival. I know it's giving people hope.

I had a friend of mine who just went through, cancer. She's still growing back her hair. I haven't talked to her since high school, that's a long time ago. She read my book and she said it was like reading her own, survival story. It showed her that life can be even better after, cancer. I also wanted to share that the problems do not go away after you, survive cancer. People would think okay now that you, beat cancer, that you should be so blissful. That you're floating in heaven.

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Google Podcast Transform Your Mind
Google Podcast Transform Your Mind

Your Cancer Journey does not end after you Beat Cancer

That's not the case. For me, I was bald. All my muscles had atrophied from being in a hospital bed for the last six months. I had, PTSD, but I didn't know it. I was still in my head sick and going through, cancer, every night. I would sleep and dream that I was still sick in the hospital. It took me a year. I think something that's really important is when you go through something like this to know when it's time to reach out for help. It took me a year to realize I needed to get help. So, I finally started talking to someone about a year out and that's when I feel like I started to really heal from, cancer.

Myrna: Wow, this is a bonus.  I would never have imagined that after you, survive cancer, and you are going to live that you are not blissfully happy!

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Deezer Transform Your Mind Podcast
Deezer Transform Your Mind Podcast

Conclusion

Book Joy the story of a dolphin trainer and cancer survivor
Book Joy the story of a dolphin trainer and cancer survivor

Your story is talking about, survival skills, for, cancer,  but there are so many things that people have to survive other illnesses or . What I mean is, this book can help a lot of people in their, survival story, whether it's divorce, whether it's losing a child, whether it's being homeless or whether it's losing your job. Whatever it is, these principles can be transferred into any, survival story.

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Transform your Mind Podcast Index
Transform your Mind Podcast Index

Additional Resources 

 

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